Online Family Intervention for Caregivers of Persons with Severe Mental Disorder: Narrative Review of Current Landscape

Ernesto Baena Ruiz*

Ernesto Baena Ruiz*

Volume4-Issue11
Dates: Received: 2023-10-26 | Accepted: 2023-11-25 | Published: 2023-11-27
Pages: 1624-1635

Abstract

Background: In recent decades, it has been observed that the literature and research on face-to- face family interventions for caregivers of people with Severe Mental Disorders (SMD) has decreased significantly. However, the use of online interventions with family members of people affected by SMD seems to emerge as a promising complementary strategy to face-to-face care, and although in an incipient and limited way, it is occupying a growing focus of interest in the literature.

Objectives: The article presents a brief narrative review of the current landscape of online family interventions aimed at caregivers of people with SMD. The main novelty of the narrative review presented in this article is the breakdown of the different elements and components explored in the limited literature on online interventions, providing a synthesis of the following aspects: Digital interventions in mental health; Components and quality criteria; Research on network interventions; Psychoeducational interventions.

Methodology: As this was a narrative review of online family interventions and given the limited literature available, no specific research methodology was used and no specific criteria were established for the selection of the studies included in this review. The methodology used was qualitative.

Results and Conclusions: As this is a narrative review, it is not possible to offer specific results or conclusions based on evidences. However, after the review conducted if it is possible to point out these two elements for future research: [1] Online care and support for family members of people with SMD can be a complementary intervention strategy to face-to-face care. [2] The online family intervention format could be incorporated into routine clinical practice in health care services and should be the subject of further research.

FullText HTML FullText PDF DOI: 10.37871/jbres1841

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How to cite this article

Ruiz EB. Online Family Intervention for Caregivers of Persons with Severe Mental Disorder: Narrative Review of Current Landscape. J Biomed Res Environ Sci. 2023 Nov 27; 4(11): 1624-1635. doi: 10.37871/jbres1841, Article ID: JBRES1841, Available at: https://www.jelsciences.com/articles/jbres1841.pdf

Subject area(s)

Mental Health

Psychiatry

References

Dixon LB, Dickerson F, Bellack AS, Bennett M, Dickinson D, Goldberg RW, Lehman A, Tenhula WN, Calmes C, Pasillas RM, Peer J, Kreyenbuhl J; Schizophrenia Patient Outcomes Research Team (PORT). The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements. Schizophr Bull. 2010 Jan;36(1):48-70. doi: 10.1093/schbul/sbp115. Epub 2009 Dec 2. PMID: 19955389; PMCID: PMC2800143.
Hartung PJ, Savickas ML, Walsh WB, editors. APA handbook of career intervention. Foundations. American Psychological Association; 2015.
Psychosis and schizophrenia in adults: Prevention and management. London: National Institute for Health and Care Excellence (NICE); 2014.
Psychosis and schizophrenia in adults. Quality standard. National Institute for Health and Care Excellence. NICE Guideline. 2015.
Rehabilitation for adults with complex psychosis. National Institute for Health and Care Excellence. NICE Guideline. 2020.
Galletly C, Castle D, Dark F, Humberstone V, Jablensky A, Killackey E, Kulkarni J, McGorry P, Nielssen O, Tran N. Royal Australian and New Zealand college of psychiatrists clinical practice guidelines for the management of schizophrenia and related disorders. Aust N Z J Psychiatry. 2016 May;50(5):410-72. doi: 10.1177/0004867416641195. PMID: 27106681.
Pringsheim T, Addington D. Canadian Schizophrenia Guidelines: Introduction and Guideline Development Process. Can J Psychiatry. 2017 Sep;62(9):586-593. doi: 10.1177/0706743717719897. Epub 2017 Aug 9. PMID: 28789558; PMCID: PMC5593245.
British Psychological Society. Family interventions in psychosis. Guidelines for psychologists and practitioners supporting families and social networks. Division of Clinical Psychology and the Faculty of Complex Mental Health and Psychosis. 2021.
Lehman AF, Steinwachs DM. Translating research into practice: the Schizophrenia Patient Outcomes Research Team (PORT) treatment recommendations. Schizophr Bull. 1998;24(1):1-10. doi: 10.1093/oxfordjournals.schbul.a033302. PMID: 9502542.
Dixon L. Providing services to families of persons with schizophrenia: present and future. J Ment Health Policy Econ. 1999 Mar 1;2(1):3-8. doi: 10.1002/(sici)1099-176x(199903)2:1<3::aid-mhp31>3.0.co;2-0. PMID: 11967401.
Pharoah F, Mari J, Rathbone J, Wong W. Family intervention for schizophrenia. Cochrane Database Syst Rev. 2010 Dec 8;(12):CD000088. doi: 10.1002/14651858.CD000088.pub2. PMID: 21154340; PMCID: PMC4204509.
Sin J, Norman I. Psychoeducational interventions for family members of people with schizophrenia: a mixed-method systematic review. J Clin Psychiatry. 2013 Dec;74(12):e1145-62. doi: 10.4088/JCP.12r08308. PMID: 24434103.
Lyman DR, Braude L, George P, Dougherty RH, Daniels AS, Ghose SS, Delphin-Rittmon ME. Consumer and family psychoeducation: assessing the evidence. Psychiatr Serv. 2014 Apr 1;65(4):416-28. doi: 10.1176/appi.ps.201300266. PMID: 24445678.
Dixon L, McFarlane WR, Lefley H, Lucksted A, Cohen M, Falloon I, Mueser K, Miklowitz D, Solomon P, Sondheimer D. Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatr Serv. 2001 Jul;52(7):903-10. doi: 10.1176/appi.ps.52.7.903. PMID: 11433107.
Amenson CS, Liberman RP. Dissemination of educational classes for families of adults with schizophrenia. Psychiatr Serv. 2001 May;52(5):589-92. doi: 10.1176/appi.ps.52.5.589. PMID: 11331790.
Eassom E, Giacco D, Dirik A, Priebe S. Implementing family involvement in the treatment of patients with psychosis: a systematic review of facilitating and hindering factors. BMJ Open. 2014 Oct 3;4(10):e006108. doi: 10.1136/bmjopen-2014-006108. PMID: 25280809; PMCID: PMC4187461.
Caqueo-Urízar A, Rus-Calafell M, Urzúa A, Escudero J, Gutiérrez-Maldonado J. The role of family therapy in the management of schizophrenia: challenges and solutions. Neuropsychiatr Dis Treat. 2015 Jan 14;11:145-51. doi: 10.2147/NDT.S51331. PMID: 25609970; PMCID: PMC4298308.
Onwumere J, Grice S, Kuipers E. Delivering cognitive‐behavioural family interventions for schizophrenia.
Australian Psychologist. 2016;51(1):52-61.
Glynn SM. Intervenciones Familiares en Esquizofrenia: esperanzas y dificultades a lo largo de 30 años. ISSN-e 1136-0968. RET. Revista de Toxicomanías. 2013;70:15-23.
Barbeito S, Sánchez-Gutiérrez T, Becerra-García JA, González Pinto A, Caletti E, Calvo A. A systematic review of online interventions for families of patients with severe mental disorders. J Affect Disord. 2020 Feb 15;263:147-154. doi: 10.1016/j.jad.2019.11.106. Epub 2019 Nov 22. PMID: 31818771.
Graven LJ, Glueckauf RL, Regal RA, Merbitz NK, Lustria MLA, James BA. Telehealth Interventions for Family Caregivers of Persons with Chronic Health Conditions: A Systematic Review of Randomized Controlled Trials. Int J Telemed Appl. 2021 May 21;2021:3518050. doi: 10.1155/2021/3518050. PMID: 34093704; PMCID: PMC8164532.
Hansen NH, Bjerrekær L, Pallesen KJ, Juul L, Fjorback LO. The effect of mental health interventions on psychological distress for informal caregivers of people with mental illness: A systematic review and meta-analysis. Front Psychiatry. 2022 Oct 6;13:949066. doi: 10.3389/fpsyt.2022.949066. PMID: 36276315; PMCID: PMC9583525.
Bakhshy A. Family caregivers of persons living with mental health conditions: Challenges and concerns.
Indian Journal of Social Psychiatry. 2021;37(4):371-377.
Blom MM, Zarit SH, Groot Zwaaftink RB, Cuijpers P, Pot AM. Effectiveness of an Internet intervention for family caregivers of people with dementia: Results of a randomized controlled trial. PLoS One. 2015 Feb 13;10(2):e0116622. doi: 10.1371/journal.pone.0116622. PMID: 25679228; PMCID: PMC4334515.
Barbabella F, Poli A, Andréasson F, Salzmann B, Papa R, Hanson E, Efthymiou A, Döhner H, Lancioni C, Civerchia P, Lamura G. A Web-Based Psychosocial Intervention for Family Caregivers of Older People: Results from a Mixed-Methods Study in Three European Countries. JMIR Res Protoc. 2016 Oct 6;5(4):e196. doi: 10.2196/resprot.5847. PMID: 27713113; PMCID: PMC5073207.
Henderson C, Knapp M, Fossey J, Frangou E, Ballard C. Cost-Effectiveness of an Online Intervention for Caregivers of People Living With Dementia. J Am Med Dir Assoc. 2022 Sep;23(9):1468-1473. doi: 10.1016/j.jamda.2022.03.002. Epub 2022 Apr 5. PMID: 35395216.
Schramm E, Breuninger C, Zehender N, Hegerl U, Elsner A, Maun A, Schmölz M, Roick C, Grodd M, Graf E. An online program with individualized vs automated support for significant others of depressed individuals- study protocol of a randomized controlled trial. BMC psychiatry. 2022;22:511. doi: 10.1186/s12888-022-04035-6.
Kerr C, Murray E, Stevenson F, Gore C, Nazareth I. Internet interventions for long-term conditions: patient and caregiver quality criteria. J Med Internet Res. 2006 Jul 28;8(3):e13. doi: 10.2196/jmir.8.3.e13. PMID: 16954123; PMCID: PMC1550703.
Guay C, Auger C, Demers L, Mortenson WB, Miller WC, Gélinas-Bronsard D, Ahmed S. Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review. J Med Internet Res. 2017 Sep 19;19(9):e313. doi: 10.2196/jmir.7896. PMID: 28928109; PMCID: PMC5627044.
Sin J, Henderson C, Woodham LA, Sesé Hernández A, Gillard S. A Multicomponent eHealth Intervention for Family Carers for People Affected by Psychosis: A Coproduced Design and Build Study. J Med Internet Res. 2019 Aug 6;21(8):e14374. doi: 10.2196/14374. PMID: 31389333; PMCID: PMC6701165.
Onwumere J, Amaral F, Valmaggia LR. Digital Technology for Caregivers of People With Psychosis: Systematic Review. JMIR Ment Health. 2018 Sep 5;5(3):e55. doi: 10.2196/mental.9857. PMID: 30185402; PMCID: PMC6231782.
Lal S, Adair CE. E-mental health: a rapid review of the literature. Psychiatr Serv. 2014 Jan 1;65(1):24-32. doi: 10.1176/appi.ps.201300009. PMID: 24081188.
Honary M, Fisher NR, McNaney R, Lobban F. A Web-Based Intervention for Relatives of People Experiencing Psychosis or Bipolar Disorder: Design Study Using a User-Centered Approach. JMIR Ment Health. 2018 Dec 7;5(4):e11473. doi: 10.2196/11473. PMID: 30530457; PMCID: PMC6303674.
Abelleira C, Baena E, Sánchez JA, Touriño R. Integración de ACT en la Intervención Multifamiliar. In: Terapia de aceptación y compromiso en psicosis: Aceptación y Recuperación por Niveles (ART), Juan A. Diaz, Horus Laffite, Raquel Zúñiga (Coord.); 2001.p.287-309.
Mairal JB. La Terapia De Aceptación y Compromiso (ACT). Fundamentos, aplicación en el contexto clínico y areas de desarrollo. Miscelánea Comillas,. 2007;65(127).
Biliunaite I, Dumarkaite A, Kazlauskas E, Sanderman R, Andersson G. ICBT program for improving informal caregiver well-being: A qualitative study. Internet Interv. 2021 Jan 7;23:100361. doi: 10.1016/j.invent.2021.100361. PMID: 33489781; PMCID: PMC7811118.
Luciano C, Valdivia-Salas S. La terapia de aceptación y compromiso. Fundamentos, características y evidencias. Papeles del Psicólogo. 2006;27(2):p.79-91.
Roldán GM, Salazar IC, Garrido L, Cuevas-Toro AM. Intervención psicológica grupal, basada en la aceptación y el entrenamiento en comunicación, con familiares de personas con trastorno mental grave. Anales de Psicología. 2015; 31(3):759-772.
Semonella M, Vilchinsky N, Dakel R, Biliunaite I, Pietrabissa G, & Andersson G. SOSteniamoci: An internet-based intervention to support informal caregivers. Psychobit. In: Onofrio Gigliotta, Michela Ponticorvo, editors. Proceedings of the Second Symposium on Psychology-Based Technologies, Naples, Italy; 2020. p.2730.
Sherifali D, Ali MU, Ploeg J, Markle-Reid M, Valaitis R, Bartholomew A, Fitzpatrick-Lewis D, McAiney C. Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis. J Med Internet Res. 2018 Jul 3;20(7):e10668. doi: 10.2196/10668. PMID: 29970358; PMCID: PMC6053616.
Stjernswärd S, Hansson L. Effectiveness and usability of a web-based mindfulness intervention for caregivers of people with mental or somatic illness. A randomized controlled trial. Internet Interv. 2018 Mar 26;12:46-56. doi: 10.1016/j.invent.2018.03.004. PMID: 30135768; PMCID: PMC6096325.
Wilson KG, Luciano C. Terapia de aceptación y compromiso. Un tratamiento conductual orientado a los valores. Madrid, Ed. Pirámide; 2002.
Álvarez-Jiménez M, Gleeson JF, Bendall S, Lederman R, Wadley G, Killackey E, McGorry PD. Internet-based interventions for psychosis: a sneak-peek into the future. Psychiatr Clin North Am. 2012 Sep;35(3):735-47. doi: 10.1016/j.psc.2012.06.011. PMID: 22929876.
Mateu-Mateu J, Navarro N. Claves y evidencias del uso de las TIC en trastorno mental. Psychology, Society, & Education. 2015;7:85. doi: 10.25115/psyev7i1.542.
Hirschtritt ME, Insel TR. Digital Technologies in Psychiatry: Present and Future. Focus (Am Psychiatr Publ). 2018 Jul;16(3):251-258. doi: 10.1176/appi.focus.20180001. Epub 2018 Jul 16. PMID: 31975919; PMCID: PMC6493099.
Williams A, Farhall J, Fossey E, Thomas N. Internet-based interventions to support recovery and self-management: A scoping review of their use by mental health service users and providers together. BMC Psychiatry. 2019 Jun 20;19(1):191. doi: 10.1186/s12888-019-2153-0. PMID: 31221125; PMCID: PMC6585058.
Sin J, Henderson C, Cornelius V, Chen T, Elkes J, Woodham L, Hernández AS, Spence-Polin D, Batchelor R, Gillard S. (2020). COPe-support- A multi- component digital intervention for family careers for people affected by psychosis: Study protocol for a randomized controlled trial. BMC Psychiatry. 2020;20. doi: 10.1186/s12888-020-02528-w.
Ploeg J, Ali MU, Markle-Reid M, Valaitis R, Bartholomew A, Fitzpatrick-Lewis D, McAiney C, Sherifali D. Caregiver-Focused, Web-Based Interventions: Systematic Review and Meta-Analysis (Part 2). J Med Internet Res. 2018 Oct 26;20(10):e11247. doi: 10.2196/11247. PMID: 30368439; PMCID: PMC6229518.
Spencer L, Potterton R, Allen K, Musiat P, Schmidt U. Internet-Based Interventions for Carers of Individuals With Psychiatric Disorders, Neurological Disorders, or Brain Injuries: Systematic Review. J Med Internet Res. 2019 Jul 9;21(7):e10876. doi: 10.2196/10876. PMID: 31290399; PMCID: PMC6647754.
Rotondi AJ, Anderson CM, Haas GL, Eack SM, Spring MB, Ganguli R, Newhill C, Rosenstock J. Web-based psychoeducational intervention for persons with schizophrenia and their supporters: one-year outcomes. Psychiatr Serv. 2010 Nov;61(11):1099-105. doi: 10.1176/ps.2010.61.11.1099. PMID: 21041348.
Hu C, Kung S, Rummans TA, Clark MM, Lapid MI. Reducing caregiver stress with internet-based interventions: a systematic review of open-label and randomized controlled trials. J Am Med Inform Assoc. 2015 Apr;22(e1):e194-209. doi: 10.1136/amiajnl-2014-002817. Epub 2014 Aug 14. PMID: 25125686.
Soto-Pérez F, Franco M. PsicoED: Una alternativa online y comunitaria para la psicoeducación en esquizofrenia. Psicoperspectivas. 2014;13(3):118-129.
Chan SK, Tse S, Sit HL, Hui CL, Lee EH, Chang WC, Chen EY. Web-Based Psychoeducation Program for Caregivers of First-Episode of Psychosis: An Experience of Chinese Population in Hong Kong. Front Psychol. 2016 Dec 26;7:2006. doi: 10.3389/fpsyg.2016.02006. PMID: 28082935; PMCID: PMC5183595.
Vaughan C, Trail TE, Mahmud A, Dellva S, Tanielian T, Friedman E. Informal Caregivers' Experiences and Perceptions of a Web-Based Peer Support Network: Mixed-Methods Study. J Med Internet Res. 2018 Aug 28;20(8):e257. doi: 10.2196/jmir.9895. PMID: 30154074; PMCID: PMC6134228.
Fitriani N, Suryadi I. A review study on online psycho-education for the bipolar disorder patient and their caregivers. Humanities & Social Sciences Reviews. 2019;6:84-89. doi:10.18510/hssr.2018.6210.
Fuller-Tyszkiewicz M, Richardson B, Little K, Teague S, Hartley-Clark L, Capic T, Khor S, Cummins RA, Olsson CA, Hutchinson D. Efficacy of a Smartphone App Intervention for Reducing Caregiver Stress: Randomized Controlled Trial. JMIR Ment Health. 2020 Jul 24;7(7):e17541. doi: 10.2196/17541. PMID: 32706716; PMCID: PMC7414413.
Martín Padilla E, Obando Posada D, Sarmiento Medina P. La adherencia familiar en el trastorno mental grave [Family adherence in serious mental disorder]. Aten Primaria. 2018 Nov;50(9):519-526. Spanish. doi: 10.1016/j.aprim.2017.06.010. Epub 2017 Oct 9. PMID: 29032844; PMCID: PMC6836919.
Baena E, Abelleira C, García M, Sánchez JA, Quintana FC, Díaz SA, Martel MC, Fernández JA, Giráldez A, Benítez N. Family Intervention in Severe Mental Disorder: An Online Intervention Format in Psychosocial Rehabilitation Centers. J Psychosoc Rehabil Ment Health. 2023;10(2):233-245. doi: 10.1007/s40737-022-00310-7. Epub 2022 Oct 6. PMID: 36217318; PMCID: PMC9534734.
Baena E, Abelleira C, García M, Sánchez JA, Quintana FC, Díaz SA, Martel MC, Fernández JA, Giráldez A, Benítez N. Family Intervention in Severe Mental Disorder: An Online Intervention Format in Psychosocial Rehabilitation Centers. J Psychosoc Rehabil Ment Health. 2023;10(2):233-245. doi: 10.1007/s40737-022-00310-7. Epub 2022 Oct 6. PMID: 36217318; PMCID: PMC9534734.